#PatientIncluded innovation: the recipe for personal control

Op-ed I co-wrote with Tim Kroesbergen for nr 4/2018 of ICT&Health magazine. Translation(al errors) my own.

Tim Kroesbergen: last April I attended the Health Innovation School (HIS) on behalf of the IKONE Foundation, to give a talk about my life and the use of digital tools to promote my health. Among other things, I talked about my vacation to France, where my wheelchair toppled over and I broke both my legs. Unfortunately I don’t speak any French, I was in unknown territory and I felt powerless.

Fortunately I was able to contact ‘my’ doctors in The Netherlands digitally, who gave me good pointers to deal with the situation in France. Herko Coomans -policy adviser at the Ministry of Health and Health Innovation School participant- was moved by my story to start an innovation project together with some of the other participants.

Innovative solution

Herko: Tim’s captivating story was the starting point of a journey to find an innovative answer to the question “how can personal health environments give people more control over their own health?”. First the team envisioned IGOR: a (currently) fictional application that helps people who are not able to travel easily due to phisical or mental limitations. IGOR (an acronym for I Go On the Road and bring with me…) is a virtual personal assistant that supports all aspects of preparation, travel and accommodation and aftercare.

Personal Health Environments play an important part of this: which medication and repeat prescriptions do I bring along, is a translated patient summary available, can I cantact my own care-team using video if necessary, etc. The first responses to this idea were positive!

One of innovation’s mantra’s is to ‘fail often and fail fast’: test your presumptions and learn from the responses. During a feedback session with Personal Health Record system providers, experience experts and innovators in the city of Tilburg, this was proven to be correct once again. However fun and useful IGOR may seem, it only solves a limited set of issues for a limited set of people. No entrepreneur who will commit to this now.

This provided the team with a valuable insight: as a user of digital health applications, you remain dependant on the functionalities that the industry provides, limiting your own span of control.

Control over your own health is a lot more then being able to access your own medical data. At its core it is about being able to fully participate in daily life despite your limitations. With this, the solution didn’t need to focus on healthcare -where most personal health record solutions tend to focus- but on daily life.

Control over healthy living

Tim: on June 12 Herko and the team presented their GoPGO solution during the graduation ceremony of the Health Innovation School. GoPGO is a way to use personal health data to get more control over healthy living on a daily basis.

Next to being a patient expertfor IKONE, I’m also an avid live music lover. Wouldn’t it be great if I could combine my current health data from my personal health system -like the trend of my pulmonary function, for instance- with National Weather Service data about the current and expected air quality, and a list of my Spotify-favorites-filtered live music events in my area? I’d get a ping if there’s a suitable performance this weekend. The National Weather Service, Spotify and the Event Calendar all have relaible API’s to connect to and get the required data in a safe and trusted way. The potential for connected services that will make our daily life easier, is huge.

In concept, GoPGO provides everyone the ability to create ‘recipies’, connecting different sources, including personal health data, into personal advice. You can share these recipies in a marketplace, so other people get the same kind of advice, based on their own data and personal preferences. And thus get real control over healthy living, and fully participate in daily life.

Patient included

Tim: when I did my talk at the Health Innovation School in April, I had no idea that the participants would be inspired to turn this into an innovation project. Especially not how Team GoPGO have done this! To me, it is Patient Included innovation at it’s best!

See www.gopgo.nl for more info (Dutch).

Tim Kroesbergen is patientexpert for the IKONE Foundation. He won the 2017 ShakingTree Award for his patient advocay work. He has Osteogenisis Imperfecta: brittle bone disease.

Trend speech 2013

The Trend Speech is an inspiring speech written by a dozen trend watchers in The Netherlands. I’m sharing the integral translation of the text for the 2013 edition right here, as I feel this should be shared as much as possible. I’m not associated or affiliated with these trendwatchers! Translation is done by Sylvie Dieteren, one of the trendwatchers involved.

This is again the third trend speech, a present of a temporary collective of 12 trendwatchers and forecasters for the Netherlands.
We would like to offer inspiration, show how the future unfolds itself and what we can do with it.

Read here the English version, translated by Sylvie Dieteren. The original, and all additional information can be found online at Trendrede.nl

TrendRede 2013
The past year was quite tumultuous. In October 2011, Occupy, you remember, took possession of a number of squares in cities all over the world. The media initially had no idea what to do with this, but we think that Occupy will be included in the history textbooks as a kind of start of a conversion.

Daily newspapers have been writing from different perspectives. All publications describe alternatives for our current economic and social systems and all types of citizens’’ initiatives continue and realize that things need to be done differently. The Netherlands slowly turns itself towards the future. If we can contribute to that with this trend speech, then we have reached our goal. Continue reading “Trend speech 2013”

Rachel Andrew’s excellent SmashingConf presentation on content management

Rachel Andrew -of Grab a Perch fame- held a very good talk at the Smashing Conference this year in Freiburg, a thought-provoking talk about content management. She talk about why and how Content Management Systems are often ‘abused’ to work as Website Management tools, instead of focussing what the users actually want and need: tools to create engaging content. This is her slide deck, I’m hoping Smashing will release a video or audio of her talk as well. Recommended reading!

My list of favorite kungfu movies on letterboxd

I got an account to the letterboxd service (still in beta as of this writing), a site in which you can share your movie interest with everyone. Since I love kungfu movies, I’ve started making a list of my favorites. It’s far from complete -I’ll add more as I go- but you can view ‘Herko’s list of kungfu movies‘ on the letterboxd website.

Xoops Foundation LLC loses its civil lawsuit against Stichting XOOPS and Herko Coomans

On april 21st 2010 the Court of Zwolle-Lelystad in The Netherlands ruled in the civil lawsuit that US-based Xoops Foundation LLC started against Stichting XOOPS (Dutch for XOOPS Foundation) and Herko Coomans, chairman of Stichting XOOPS and formerly an active volunteer in the international XOOPS community and the XOOPS.org website. In its ruling, the Court dismissed all claims of illegal activity of Stichting XOOPS and Herko Coomans as unproven by Xoops Foundation LLC, and sentenced Xoops Foundation LLC to pay due damages to Herko Coomans and Stichting XOOPS. Continue reading “Xoops Foundation LLC loses its civil lawsuit against Stichting XOOPS and Herko Coomans”

My predictions for the Apple Tablet

It’s only hours away, and thousands of people have talked and published about it already, but here’s my take on today’s event.

Apple has a nice track record for shaking up entire industries by introducing new devices. It changed the way we buy and consume music with the iPod (arguably not the best music player in the field, and not the first either), it changed the mobile phone industry with the introduction of the iPhone (same here, probably not the best smartphone out there, nor the first). The core of the success of these devices wasn’t the device itself, but the way it made accessing and using content easier and more enjoyable. I think we will see a repetition of this strategy later today.

My prediction: the Apple Tablet will shake the media publishing industry to its roots. And that is what the device will be aimed at: consuming rich content. Continue reading “My predictions for the Apple Tablet”